My Progress
I'm moving 50 kms this month to leave MS behind
My Progress
32 KMS
My target
50 KMS
Still Moving: A 50K Challenge to End MS
I live with MS.
A body that resists.
A will that won’t quit.
This May,
I’ll move fifty kilometers —
on my tricycle,
with my rollator,
one way or another.
Some days I glide.
Some days I struggle.
But every step says:
I’m still here.
Still moving.
Still hoping.
I’m doing this for me,
for the 2.8 million in the world,
for all of us waiting on a cure.
Walk with me.
Push with me.
Support the research.
And help bring a world without MS closer.
P.S. I have Ehlers-Danlos too, which can mess with how my body absorbs vitamin D — and low vitamin D is linked to MS. So it’s not just about supplements, but making sure they actually work.
My Updates
Feeling Grateful
I’ve been blown away by the generosity flowing into my May 50K challenge — from amazing local supporters (you know who you are!) to… a band from Atlanta?!?
Thanks to some Facebook sleuthing and a gently-executed interrogation of one of my sons, I discovered he shared my fundraising link with his favourite band — and they donated. I'm still a bit stunned!
Whether you're nearby or across the ocean, your support means the world to me. Every donation, every kind word, every share is helping me move — one pedal push and rollator step at a time — toward a future without MS.
And speaking of my son — he drew a picture of me in my travel wheelchair for the May 50K. (Yes, even the hair was accurate!)
I only use the chair when MS fatigue hits hard or for long journeys where it might — but knowing he sees me showing up however I can meant the world.
Also — a huge thank-you to my husband, who is my tech support, route planner, GPS, step-stool provider, and all-around cheer squad. I couldn’t do this without him. 💛
Thank you all. I feel turbocharged. 🚲💨
Daunting Day One
Sneakers? Essential. And thankfully, my husband left me the foldable step before heading to work — I figure I can perch on it while plugging in the electric pedal assist.
Wait… is it even charged? I should probably check that first.
Next up: sneakers — and then the best feeling ever…
Flying full speed through the wide, open Dutch countryside on a smooth fietspad (bike path made just for moments like this).
I’ll omit the expletives between now and actually sitting on the bike — LOL.
For now, my brain sounds like this:
“Sneakers > socks > bike… wait, no. Socks > sneakers > bike!
Or maybe socks > sneakers > KEYS > bike... Did I eat breakfast? Did I take my ADHD meds? Uh-oh! What was I doing?”
I didn’t manage to cycle all day — two new pain spots and some EDS cramps had other ideas. But I told my husband I didn’t want Day One to become Day None. So I ditched the confusing map apps and relied on the best GPS I have: my husband.
We cycled out through Midden-Delfland and covered 9.44 km today. A solid start to the May 50K!
Susi, I wish you nice bike rides together with Jan. Let's hope for nice weather ☀️ the coming weeks to be outdoors. Best Ilja